
Today is difficult for us and our little guy.
He slept well through the night but when they went to hook up the EEG at 8 o' clock this morning, he started having some visible convulsions with his right hand moving involuntarily.
When they got the EEG hooked up they noted that he was basically having convulsions fairly continuously now on the left side of the brain whereas yesterday this was on right side (due to the pressure caused by the liquid). Anti- convulsion medication was not having any effect so they decided to do another brain drain this afternoon and they pulled off 34cc of fluid from mostly right side of the brain. The convulsions seemed to stop for a time but then returned indicating the brain is in distress.
We are now relying on faith in God as it is only he who has the ability to produce the miracle. We are also looking to reinforce our faith that we can withstand all things..
We are hanging in there and drawing hope from small miracles. The fact that his soft spot has remained open has enabled them access to his brain without having to drill a hole through his skull.
They have him on a lot of saline solution to help drain the liquid from the brain which has caused him to swell up in his appendages and has some reaction that makes his cheeks very rosy so he looks very cherubic right now albeit with a lot of tubes and lines going into him.
I ventured across the street to a grocery store to buy some water and found they sold Dr Pepper and oreos-- in our almost nine years of living in Paris I have never seen that magic combination of comfort food.
We saw the girls for a little while today and they are in excellent hands with some earthly angels. They seem to be coping well but they want their brother back. Penelope seems to be benefiting from the positive attention of being the only baby around.
We have been living in the hospital for over three days and we are having the realisation that the adrenaline is running low and we need to recharge a bit but it is difficult for either of us to imagine leaving here without Parker.
We are looking for what the lessons we are supposed to learn from all this are but we are having a hard time accepting that one of those may be patience.
Thank you all for your continued support through this. We feel that we are taking the steps we can take and that your combined faith and prayers carries us that much further. Renee and I have exchanged periods of highs and lows and when one of has started to falter we have always had the other one to lean on throughout the day. I am so proud of her and feel so richly blessed that she is my wife.
No comments:
Post a Comment