Parker was calm the night and this morning. His vital signs drop quite a bit when he is moved so they try to disturb him as little as possible.
He was coughing some today which is a positive sign that the cerebral stem is still working-- although this does tend to increase the pressure on his head.
He was on the EEG today for five hours and for a period of two hours he was having involuntary convulsions with his left hand which they interpreted as there being a possible abscess on his right brain. In order to determine they decided to do a CT Scan even though the risk of decline was higher as they would have to move him. We were able to accompany him all the way to the room and he remained stable throughout the scan. They did not find an abscess but did find that there was excess fluid on the right brain which was likely causing the pressure.
They had to stick a needle into his head through the fontanel (soft spot) to drain out the liquid which should relieve the pressure on his brain. On the first attempt they determined that the platelet count was too low so they gave him some platelets and then tried again. The second time they pulled out 20ccs of fluid which was dirty (has bacteria in it). They are hoping this will relieve the cranial pressure and will be monitoring this. Tonight he is being monitored very closely as there is an elevated risk of decline.
While we have had a very emotional past few days we have been sustained through the prayers and fasts of friends and family across the world. It has meant so much to us that so many of you have been praying for our little son and we have derived strength from this (and know he derives strength from this as well) throughout this time. We have been encircled by such a level of love and support and so many offers of help for us but also for our girls who have been without their parents for the past few days. We can never express the true measure of gratitude for your e-mails and texts as they lift us up when we have our very real moments of fear and desperate heartache. The road before us and
Parker is still very uncertain but want to thank you for the sustaining support you have given us the past 48 hours.
We feel the heavens resounding with your fervent prayers.
Our love
John & Renee
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