Parker seems to be doing much better.
After a couple of days of anomalies with our little boy, we are somewhat re-assured but still waiting and hoping.
On Thursday Dr. Quijano read the results of the EEG from the previous day and became more concerned as it indicated that there seemed to be a series of mini-convulsions almost constantly that weren't manifesting in addition to the facial tick. The convulsions would stop when he would enter a "deep sleep" phase. At her request we took Parker to Garches to run a CT scan but showed no differences agaist what was already there two weeks prior. She also determined that he had an ear infection and started him on antibiotics.
Friday, Dr. Quijano organized for us to meet with Dr. Kossorotoff, the Neurologist at Necker. She examined him and looked at the EEG and scans. Dr. Kossorotoff believes that the increased brain anomolies may be due to the ear infection and that often this can be the case in children who have already had convulsions. She gave us two options, either add another medication to the current anti-convulsive, or we could wait, watch and see if the convulsions go away with the infection. We opted for the latter. We have a follow-up scheduled with her next Friday but we can cancel if things seem to right themselves between now and then.
I guess this is somewhat the new normal for us as I anticipate that every time Parker gets sick we are going to elevate it quickly. This is part due to the fact that with the meningitis we feel that we should have done something sooner but didn't recognize the seriousness of the situation.
The contrasting part for us is that Parker is still the happiest child we have ever had. His face lights up when we see him and he has a series of almost constant "happy" sounds.
We have also progressed on the "why" somewhat as we have been humbled again by the power of prayer and fasting.
